Hi all!Today I woke up early... well early for me anyway ;o)... and went to Straw Hat Pizzeria to keep the Hulls company during their fundraiser for Alisha. 
For those of you that don't know, Alisha is a very special little girl. She was born with Camellia De Lange Syndrome (CDLS). CDLS is caused by a mutation in the genes. For Alisha this meant severe digestive tract issues. For the first several years of her life doctors were trying just to get enough nutrition to stay in her little body for her to grow and be healthy. They finally realized that she also has Celiacs disease which means that she cannot have gluten (aka: wheat). Alisha's Parents and Doctors worked hard and found a routine that worked for her to keep food in her wee body. Alisha is currently on a feeding tube and carries a small backpack around with her pump in it so that she can move around.
Alisha has grown so much but really does not like wearing her backpack all day long or having her pump beep in the middle of her preschool class. Alisha is finally starting to eat a few grains of rice, some small crackers, and drink water. However she is a long way off from being able to eat enough to sustain her. Alisha was accepted into clinic in New Jersey that will provide treatments for her to help her learn to eat food. Please visit her blog and donate if you can.
So where was i.... Oh yes! The fundraiser! We stood outside and held signs for people to come in and buy pizza. Straw Hat pizza agreed to donate 50% of purchases to Alisha's treatments. Even Alisha was out there yelling "Pizza!! get your pizza!!" She also threw in the occassional "CAR WASH" which they will be having on Saturday.
Even her Uncle Jared got in on the sign waving! and for him that's quite a feat itself!
So many people came out and showed their support for Alisha and her family! I was so impressed by just the random people who came up and donated what they could even above and beyond the pizza purchases. It was fantastic! 
Even Bri showed up to show her support! well... she was kinda of tired :o)
Anyway, I just wanted to say thank you to everyone that showed up and did what they could for Alisha. Thank you, thank you, THANK YOU!
Lots of hugs and love,
Zhetta
For those of you that don't know, Alisha is a very special little girl. She was born with Camellia De Lange Syndrome (CDLS). CDLS is caused by a mutation in the genes. For Alisha this meant severe digestive tract issues. For the first several years of her life doctors were trying just to get enough nutrition to stay in her little body for her to grow and be healthy. They finally realized that she also has Celiacs disease which means that she cannot have gluten (aka: wheat). Alisha's Parents and Doctors worked hard and found a routine that worked for her to keep food in her wee body. Alisha is currently on a feeding tube and carries a small backpack around with her pump in it so that she can move around. Alisha has grown so much but really does not like wearing her backpack all day long or having her pump beep in the middle of her preschool class. Alisha is finally starting to eat a few grains of rice, some small crackers, and drink water. However she is a long way off from being able to eat enough to sustain her. Alisha was accepted into clinic in New Jersey that will provide treatments for her to help her learn to eat food. Please visit her blog and donate if you can.So where was i.... Oh yes! The fundraiser! We stood outside and held signs for people to come in and buy pizza. Straw Hat pizza agreed to donate 50% of purchases to Alisha's treatments. Even Alisha was out there yelling "Pizza!! get your pizza!!" She also threw in the occassional "CAR WASH" which they will be having on Saturday.
Even her Uncle Jared got in on the sign waving! and for him that's quite a feat itself!So many people came out and showed their support for Alisha and her family! I was so impressed by just the random people who came up and donated what they could even above and beyond the pizza purchases. It was fantastic! Even Bri showed up to show her support! well... she was kinda of tired :o)Anyway, I just wanted to say thank you to everyone that showed up and did what they could for Alisha. Thank you, thank you, THANK YOU!
Lots of hugs and love,
Zhetta
1 comment:
I love the last picture of Alisha and Heather! Too cute! It was fun seeing you there yesterday!
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